The last 24 hours have been a whirlwind of relief and love, please forgive me for not posting last night!
Today was spent running back and forth from the apartment (through FRESH AIR AND SUN!) to MDA for blood work and then a 3 hour magnesium infusion. This post will be short because I'm a little sleepy:) Toward the end of my infusion this afternoon, which took place in what was basically a hospital room, Elsa the AYA coordinator popped her head in and said that she had someone for me to meet. She has been trying to track down another CML Stem Cell/ BMT patient my age to talk to, and today she succeeded. Montreal is 25 and just came off of his 100 days from his allo transplant (related donor- his only sister was a perfect match, AMAZING!) and was in the clinic today to interview for a spot on the young adult council. I can't even tell you what it felt like to talk to someone who understands, like really understands, what it's like to have an old person's disease that is controlled in 98% of patients. He was funny, honest and in amazing health. We laughed about Gleevec 'the magic pill' (HA.), what the 100 days experience is like and our time on G9 (the Peds floor). Marcel hung out for a good hour and a half and it was just awesome to meet him and I'm so grateful to Elsa for introducing us. Thanks Elsa:)
Here is a photographic walk through the last day or so. Enjoy!
Thank you so much for the comments and emails of support and love yesterday, dear friends. Your love sustains:) FYI, tomorrow afternoon I'm going to try to broadcast live from my Justin.tv account. If you would like to join the fun (you can talk to me!! wahoo!), please either check FB around 3 or go to Justin.tv. com and search 'hollowmeout' to subscribe to my channel. I hope to be able to talk live with you!!
Much love (and fall weather!) Philly!